Part 2: what if you found out their diagnosis 1 week after birth

  • zqps@sh.itjust.works
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    1 day ago

    There’s very much an ethical problem here. Sure, it’s fairly clear-cut with some debilitating genetic issues. But there’s a point at which you’re veering into eugenics, and that’s sooner than people think.

    Take children who are deaf due to a genetic defect. I’m sure most parents imagine being deaf a terrible lot in life that they’d like to spare their kids from.

    Then listen to actual members of the deaf community. They’re proud of their identity, they have their own language, and they’re terrified of the prospect of being essentially eliminated in just a few generations by well-meaning folks that can’t imagine a happy life as a deaf person.

    What if we discover a few years from now that there are genetic markers for being queer? What if we can genetically engineer people to be thinner, more muscular, have a more attractive bone structure, lighter skin? Those are all things that offer an objectively more comfortable life, which I’m sure many parents would want for their kids without much thought given to what the societal implications are.

    And what if this technology becomes available to a charismatic cult leader, a narcissistic tech CEO, a fascist regime?

    Such technology doesn’t just fix genetic diseases. In a hierarchical global society that measures people’s worth by their body rather than their character, it eliminates human diversity.

    • Zephyr@sh.itjust.works
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      1 day ago

      Yes designer babies are totally going to be a thing. The ethical discussion we had about this in college boiled down to it being ethical if and only if an individual could choose to undo and redo the changes as they desire.

      I’ve run into that argument from the deaf community. It’s a tough one, should a community of people have more of a say over what health outcomes are chosen than the parents of said child?

      Ultimately technology should make whatever one wills be (short of causing suffering to other minds). Anything less than this is insufficient or otherwise broken technology. Theoretically if we had sufficient technology one could take any form whatsoever they desire at any moment with any senses they desire and so on. Now it’s a quite far fetched concept short of us gaining the ability to digitize our minds or otherwise inhabit simulated realities. To achieve this in physical reality would be quite difficult.

      The issue you’re really getting at is the unequal spread of technology and our current technological limitations. Minds should be maximally free to experience whatever they desire short of causing other minds suffering.